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Pain Res Manag. 2017;2017:8123812. doi: 10.1155/2017/8123812. Epub 2017 Feb 9.

Development and Implementation of a Registry of Patients Attending Multidisciplinary Pain Treatment Clinics: The Quebec Pain Registry.

Author information

1
Centre de Recherche du Centre Hospitalier de l'Université de Montréal (CRCHUM), Montréal, QC, Canada; Research Center of the Montreal Heart Institute, Montreal, QC, Canada; Department of Anesthesiology, Faculty of Medicine, Université de Montréal, Montreal, QC, Canada; Quebec Pain Research Network, Sherbrooke, QC, Canada.
2
Quebec Pain Research Network, Sherbrooke, QC, Canada; Alan Edwards Centre for Research on Pain, McGill University, Montreal, QC, Canada; Department of Family Medicine, Faculty of Medicine, McGill University, Montreal, QC, Canada; Department of Anesthesiology, Faculty of Medicine, McGill University, Montreal, QC, Canada.
3
Centre de Recherche du Centre Hospitalier de l'Université de Montréal (CRCHUM), Montréal, QC, Canada; Department of Anesthesiology, Faculty of Medicine, Université de Montréal, Montreal, QC, Canada.
4
Centre de Recherche du Centre Hospitalier de l'Université de Montréal (CRCHUM), Montréal, QC, Canada; Quebec Pain Research Network, Sherbrooke, QC, Canada; Département des Sciences de la Santé, Université du Québec en Abitibi-Témiscamingue, Rouyn-Noranda, QC, Canada.
5
Centre de Recherche du Centre Hospitalier de l'Université de Montréal (CRCHUM), Montréal, QC, Canada; Research Center of the Montreal Heart Institute, Montreal, QC, Canada.
6
Quebec Pain Research Network, Sherbrooke, QC, Canada; Department of Anesthesiology, Faculty of Medicine and Health Sciences, Université de Sherbrooke, Sherbrooke, QC, Canada.
7
Department of Anesthesiology, Faculty of Medicine, Université de Montréal, Montreal, QC, Canada; Quebec Pain Research Network, Sherbrooke, QC, Canada; Pain Centre of Expertise, Integrated Health Network of Montreal University, Montreal, QC, Canada; Pain Clinic, Centre Hospitalier de l'Université de Montréal, Montréal, QC, Canada.
8
Quebec Pain Research Network, Sherbrooke, QC, Canada; School of Nursing, Faculty of Medicine and Health Sciences, Université de Sherbrooke, Sherbrooke, QC, Canada.
9
Pain Centre of Expertise, Integrated Health Network of Sherbrooke University, Sherbrooke, QC, Canada; Department of Neurosurgery, Faculty of Medicine and Health Sciences, Université de Sherbrooke, Sherbrooke, QC, Canada; Pain Clinic, Centre Hospitalier de l'Université de Sherbrooke, Sherbrooke, QC, Canada.
10
Impacts Inc., Saint-Lambert, QC, Canada.
11
Quebec Pain Research Network, Sherbrooke, QC, Canada; Quebec Mental Health Institute of Research Center, Quebec City, QC, Canada; Department of Psychiatry & Neurosciences, Faculty of Medicine, Université Laval, Quebec City, QC, Canada.
12
Centre de Recherche du Centre Hospitalier de l'Université de Montréal (CRCHUM), Montréal, QC, Canada; Research Center of the Montreal Heart Institute, Montreal, QC, Canada; Department of Family Medicine, Faculty of Medicine, Université de Montréal, Montreal, QC, Canada.
13
Department of Anesthesiology, Faculty of Medicine, Université Laval, Quebec City, QC, Canada; Pain Clinic, Hôtel-Dieu de Lévis, Lévis, QC, Canada.
14
Centre de Recherche du Centre Hospitalier de l'Université de Montréal (CRCHUM), Montréal, QC, Canada.
15
Quebec Pain Research Network, Sherbrooke, QC, Canada; Department of Pharmacology and Physiology, Faculty of Medicine and Health Sciences, Université de Sherbrooke, Sherbrooke, QC, Canada.
16
Quebec Pain Research Network, Sherbrooke, QC, Canada; Alan Edwards Centre for Research on Pain, McGill University, Montreal, QC, Canada; Department of Anesthesiology, Faculty of Medicine, McGill University, Montreal, QC, Canada.
17
Department of Anesthesiology, Faculty of Medicine, Université Laval, Quebec City, QC, Canada; Pain Clinic, Hôtel-Dieu de Lévis, Lévis, QC, Canada; Pain Centre of Expertise, Integrated Health Network of Laval University, Quebec City, QC, Canada.
18
Department of Anesthesiology, Faculty of Medicine, Université Laval, Quebec City, QC, Canada; Pain Centre of Expertise, Integrated Health Network of Laval University, Quebec City, QC, Canada; Pain Clinic, Centre Hospitalier Universitaire de Québec, Quebec City, QC, Canada.

Abstract

The Quebec Pain Registry (QPR) is a large research database of patients suffering from various chronic pain (CP) syndromes who were referred to one of five tertiary care centres in the province of Quebec (Canada). Patients were monitored using common demographics, identical clinical descriptors, and uniform validated outcomes. This paper describes the development, implementation, and research potential of the QPR. Between 2008 and 2013, 6902 patients were enrolled in the QPR, and data were collected prior to their first visit at the pain clinic and six months later. More than 90% of them (mean age ± SD: 52.76 ± 4.60, females: 59.1%) consented that their QPR data be used for research purposes. The results suggest that, compared to patients with serious chronic medical disorders, CP patients referred to tertiary care clinics are more severely impaired in multiple domains including emotional and physical functioning. The QPR is also a powerful and comprehensive tool for conducting research in a "real-world" context with 27 observational studies and satellite research projects which have been completed or are underway. It contains data on the clinical evolution of thousands of patients and provides the opportunity of answering important research questions on various aspects of CP (or specific pain syndromes) and its management.

PMID:
28280406
PMCID:
PMC5322414
DOI:
10.1155/2017/8123812
[Indexed for MEDLINE]
Free PMC Article

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