Format

Send to

Choose Destination
J Pediatr Health Care. 2017 Jul - Aug;31(4):459-469. doi: 10.1016/j.pedhc.2016.11.007. Epub 2016 Dec 24.

Kawasaki Disease With Coronary Artery Aneurysms: Psychosocial Impact on Parents and Children.

Abstract

INTRODUCTION:

For those living with Kawasaki disease and coronary artery aneurysms, little is known about the psychosocial burden faced by parents and their children.

METHODS:

Exploratory, descriptive, mixed-methods design examining survey and interview data about health-related uncertainty, intrusiveness, and self-efficacy.

RESULTS:

Parents' uncertainty was associated with missed diagnosis, higher income, and maternal education. Higher uncertainty scores among children were associated with absence of chest pain and lower number of echocardiograms. High intrusiveness scores among parents were associated with previous cardiac catheterization, use of anticoagulants, lower parent education and income, and missed diagnosis. High intrusiveness scores among children were associated with high paternal education. Children's total self-efficacy scores increased with chest pain and larger aneurysm size. Qualitative analysis showed two central themes: Psychosocial Struggle and Cautious Optimism.

DISCUSSION:

Negative illness impact is associated with a more intense medical experience and psychosocial limitations. Timely assessment and support are warranted to meet parents' and children's needs.

KEYWORDS:

Kawasaki disease; anxiety; children; coronary artery aneurysms; psychosocial functioning; uncertainty

PMID:
28027841
DOI:
10.1016/j.pedhc.2016.11.007
[Indexed for MEDLINE]

Supplemental Content

Full text links

Icon for Elsevier Science
Loading ...
Support Center