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Am J Bioeth. 2016 Dec;16(12):33-38.

Does Lack of "Genetic-Relative Family Health History" Represent a Potentially Avoidable Health Disparity for Adoptees?

Author information

1
a HudsonAlpha Institute for Biotechnology and University of California San Francisco.
2
b Hudson Alpha Institute of Biotechnology.
3
c University of Wisconsin Milwaukee.
4
d Medical College of Wisconsin.
5
e Aurora University of Wisconsin Medical Group.
6
f University of North Carolina Chapel Hill.
7
g University of Massachussetts Amherst.

Abstract

Many adoptees face a number of challenges relating to separation from biological parents during the adoption process, including issues concerning identity, intimacy, attachment, and trust, as well as (for older adopted children) language and other cultural challenges. One common health challenge faced by adoptees involves lack of access to genetic-relative family health history (GRFHx). Lack of GRFHx represents a disadvantage due to a reduced capacity to identify diseases and recommend appropriate screening for conditions for which the adopted person may be at increased risk. In this article, we draw out common features of traditionally understood "health disparities" in order to identify analogous features in the context of adoptees' lack of GRFHx.

KEYWORDS:

genetics (clinical); health policy

PMID:
27901440
DOI:
10.1080/15265161.2016.1240255
[Indexed for MEDLINE]

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