Format

Send to

Choose Destination
J Community Health. 2017 Jun;42(3):472-480. doi: 10.1007/s10900-016-0279-2.

Needs, Priorities, and Recommendations for Engaging Underrepresented Populations in Clinical Research: A Community Perspective.

Author information

1
Department of Internal Medicine, Meharry Medical College, Nashville, TN, 37208, USA.
2
Department of Family and Community Medicine, Meharry Medical College, Nashville, TN, 37208, USA.
3
Vanderbilt Institute for Clinical Translational Research (VICTR), Vanderbilt University Medical Center, Nashville, TN, 37203, USA.
4
National Health Care for the Homeless Council, Nashville, TN, USA.
5
Vanderbilt University School of Medicine and Vanderbilt Institute for Medicine and Public Health, Nashville, TN, 37203, USA.
6
Meharry-Vanderbilt Alliance and Vanderbilt University, Nashville, TN, 37208, USA.
7
Johns Hopkins Center to Reduce Cancer Disparities, Baltimore, MD, 21287, USA.
8
Nashville CARES, Nashville, TN, 37204, USA.
9
Department of Surgery, Meharry Medical College, Nashville, TN, 37208, USA.
10
Meharry-Vanderbilt Alliance, Vanderbilt University Medical Center, Meharry Medical College, 1005 Dr. D.B. Todd Jr. Blvd., BioMedical Building, Nashville, TN, 37208, USA. consuelo.h.wilkins@vanderbilt.edu.

Abstract

Engaging underrepresented groups in outcomes research is a public health priority for reducing health and health care disparities; yet, engaging these groups is challenging. Failure to involve these underrepresented populations in research further exacerbates these disparities. This article presents the health and research priorities of diverse groups of underrepresented populations in biomedical research, their concerns for participating in research, and strategies to engage them in their healthcare and research studies. Eleven community listening sessions, ranging from 7 to 13 community members each (Nā€‰=ā€‰117), representing racial/ethnic minority, economically disadvantaged (e.g., uninsured), and hearing impaired communities. We used an inductive, qualitative content analysis approach to analyze the data for emerging themes. We identified the following themes: Uncertainties of underrepresented populations regarding research participation; Ineffective communication about research opportunities and research findings; Research on primary care and prevention are priorities for underrepresented populations in research; and Research teams need training in cultural competence and humility. Underrepresented groups provided research priorities, concerns, and strategies to engage them in their healthcare and in research studies. Findings from this study could facilitate improvement of research participation among underrepresented groups, ultimately reducing health disparities and improving quality of life among groups commonly omitted from research recruitment and participation.

KEYWORDS:

Community engagement; Health and healthcare disparities; Research studies; Underrepresented populations

PMID:
27812847
PMCID:
PMC5408035
DOI:
10.1007/s10900-016-0279-2
[Indexed for MEDLINE]
Free PMC Article

Supplemental Content

Full text links

Icon for Springer Icon for PubMed Central
Loading ...
Support Center