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Gynecol Oncol. 2016 Nov;143(2):362-366. doi: 10.1016/j.ygyno.2016.08.335. Epub 2016 Sep 13.

Electronic patient-reported outcomes from home in patients recovering from major gynecologic cancer surgery: A prospective study measuring symptoms and health-related quality of life.

Author information

1
Memorial Sloan Kettering Cancer Center, New York, NY, USA.
2
The University of Texas MD Anderson Cancer Center, Houston, TX, USA.
3
Icahn School of Medicine at Mount Sinai, New York, NY, USA.
4
University of Washington School of Medicine, Seattle, WA, USA.
5
University of Connecticut School of Medicine, Hartford Hospital, Hartford, CT, USA.
6
Lineberger Comprehensive Cancer Center, School of Medicine, University of North Carolina, Chapel Hill, Chapel Hill, NC, USA.
7
Memorial Sloan Kettering Cancer Center, New York, NY, USA. Electronic address: chid@mskcc.org.

Abstract

PURPOSE:

We previously reported on the feasibility of a Web-based system to capture patient-reported outcomes (PROs) in the immediate postoperative period. The purpose of this study was to update the experience of these patients and assess patient and provider satisfaction and feedback regarding the system.

METHODS:

This is a prospective cohort study of patients scheduled to undergo laparotomy for presumed gynecologic malignancy. Patients completed a Web-based Symptom Tracking and Reporting (STAR) questionnaire preoperatively and weekly during a 6-week postoperative period. Email alerts were sent to study nurses when concerning patient responses were entered. The patient and the nurse assessments of STAR's usefulness were measured via an exit survey.

RESULTS:

The study enrolled 96 eligible patients. Of these, 71 patients (74%) completed at least four of seven total sessions. Of the patients who completed the exit satisfaction survey, 98% found STAR easy to use; 84% found it useful; and 82% would recommend it to other patients. Despite positive feedback from patients, clinical personnel found that the STAR system increased their current workload without enhancing patient care.

CONCLUSIONS:

Application of an electronic program for PROs in those recovering from major gynecologic cancer surgery is feasible, and acceptable to most patients. While most clinicians did not find STAR clinically helpful, the majority of patients reported a positive experience with the system and would recommend its use. The program helped many patients feel more empowered in their postoperative recovery.

KEYWORDS:

Gynecologic cancer; Gynecologic surgery; Patient-reported outcomes; Quality of life

PMID:
27637366
PMCID:
PMC5535805
DOI:
10.1016/j.ygyno.2016.08.335
[Indexed for MEDLINE]
Free PMC Article

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