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J Dermatolog Treat. 2017 Jun;28(4):318-321. doi: 10.1080/09546634.2016.1230176. Epub 2016 Sep 22.

Understanding patient experiences with scarring alopecia: a qualitative study with management implications.

Author information

1
a Department of Dermatology, Howard University College of Medicine , Washington , DC , USA.
2
b Department of Dermatology , Johns Hopkins School of Medicine , Baltimore , MD , USA.

Abstract

INTRODUCTION:

Alopecia can have a significant negative impact on patient's lives. The objective of this study is to describe some of the emotional and psychological challenges that affect women with scarring alopecia (SA).

METHODS:

A qualitative study design was used with open-ended, individual interviews with 10 women with biopsy-proven SA. Interviews were audio-taped, transcribed verbatim and analyzed thematically using ATLAS.ti analysis software.

RESULTS:

Four overarching major themes (with several subthemes) emerged including the following: the negative emotional impact of SA, difficulties with concealing hair loss, negative experiences with diagnosis/management, and the importance of support from others. Patients reported that many of these issues were under-emphasized during doctor visits.

CONCLUSION:

Analysis of patient responses indicated that patients with SA contend with significant emotional and psychological sequelae of their diagnosis.

KEYWORDS:

Hair loss; central centrifugal cicatricial alopecia; cicatricial alopecia ethnic hair; quality of life; scarring alopecia

PMID:
27615549
DOI:
10.1080/09546634.2016.1230176
[Indexed for MEDLINE]

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