Format

Send to

Choose Destination
Soc Sci Med. 2016 Aug;162:151-7. doi: 10.1016/j.socscimed.2016.06.029. Epub 2016 Jun 18.

"You get to know the people and whether they're talking sense or not": Negotiating trust on health-related forums.

Author information

1
University of Manchester, United Kingdom. Electronic address: ellen.brady1987@gmail.com.
2
University of Manchester, United Kingdom.

Abstract

The internet is increasingly being used as a source of health advice and information by individuals with long term conditions (LTCs). Specifically, online forums allow people to interact with others with similar conditions. However, it is not clear how online health information is assessed by those with LTCs. This study aims to address this gap by exploring how individuals with contested and uncontested LTCs utilise internet forums. Semi-structured interviews were conducted with 20 participants with ME/CFS and 21 participants with type 1 and 2 diabetes and analysed using thematic analysis. Participants were recruited via online and offline routes, namely forums, email lists, newsletters, and face-to-face support groups. The findings indicate that the use of online forums was a complex and nuanced process and was influenced by a number of individual and illness-specific factors. Participants trusted those with similar experiences and perspectives as themselves, while also valuing conventional biomedical information and advice. By accessing support online, forum users were able to draw on a personalised form of support based on the lived experiences of their peers. However, the role of digital literacy in developing and maintaining online relationships must be acknowledged.

KEYWORDS:

Health information; Internet forums; Online peer support; Trust; United Kingdom

PMID:
27359321
PMCID:
PMC4962769
DOI:
10.1016/j.socscimed.2016.06.029
[Indexed for MEDLINE]
Free PMC Article

Supplemental Content

Full text links

Icon for Elsevier Science Icon for PubMed Central
Loading ...
Support Center