Format

Send to

Choose Destination
PLoS One. 2016 Jun 28;11(6):e0157042. doi: 10.1371/journal.pone.0157042. eCollection 2016.

Ethics in Community-Based Research with Vulnerable Children: Perspectives from Rwanda.

Author information

1
Harvard T.H. Chan School of Public Health, Department of Global Health and Population, Boston, Massachusetts, United States of America.
2
Harvard Medical School, Department of Global Health and Social Medicine, Boston, Massachusetts, United States of America.
3
Partners In Health-Rwanda/ Inshuti Mu Buzima (PIH-IMB), Kigali, Rwanda.
4
Ministry of Health, Government of Rwanda, Kigali, Rwanda.
5
Boston Children's Hospital, Boston, Massachusetts, United States of America.
6
Partners In Health, Boston, Massachusetts, United States of America.
7
University of Global Health Equity, Kigali, Rwanda.
8
Rwanda Biomedical Center, Kigali, Rwanda.
9
Dartmouth College, Hanover, New Hampshire, United States of America.

Abstract

A "risk of harm" protocol to identify youth in need of immediate emergency assistance in a study on mental health and HIV in Rwanda among 680 youth ages 10-17 is described. Cases are presented that describe the experience in using this protocol to ensure safety of participants, with ethical and logistical challenges considered. Among the population of the study, 3.2% were deemed "risk of harm." The most prevalent presenting problem was non-fatal suicidal behavior (91% of risk of harm cases), with 36% having a history of a reported previous attempt. Challenges included: acute food insecurity/significant poverty; lack of support/adequate supervision from family members; family violence; alcohol abuse; and HIV-related stigma. Development of a "risk of harm" protocol and collaboration between study staff, community leadership, health authorities, and health workers are critical to ensuring participants' safety in research among vulnerable populations.

PMID:
27351337
PMCID:
PMC4924793
DOI:
10.1371/journal.pone.0157042
[Indexed for MEDLINE]
Free PMC Article

Supplemental Content

Full text links

Icon for Public Library of Science Icon for PubMed Central
Loading ...
Support Center