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Clin Rehabil. 2017 Mar;31(3):403-413. doi: 10.1177/0269215516643846. Epub 2016 Jul 10.

Caregiving demands and caregivers' psychological outcomes: the mediating role of perceived injustice.

Author information

1
1 Health Psychology Department, University Medical Centre Groningen, University of Groningen, Groningen, The Netherlands.
2
2 Centre for Pediatric Pain Research, IWK Health Centre, Halifax, Canada.
3
3 Pain Centre, Department of Anesthesiology, University Medical Centre Groningen, University of Groningen, Groningen, The Netherlands.
4
4 Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands.

Abstract

OBJECTIVES:

This study hypothesized that higher caregiving demands are related to higher perceived injustice. Furthermore, this study investigated the mediating role of perceived injustice in the link between caregiving demands and caregivers' psychological well-being.

DESIGN:

A cross-sectional design.

SETTING:

The Pain Centre of the university medical centre.

SUBJECTS:

Participants were 184 family caregivers of patients with chronic musculoskeletal pain.

MAIN MEASURES:

Participants completed questionnaires that assessed caregiving demands (i.e. The Dutch Objective Burden Inventory), perceived injustice (i.e. The Injustice Experience Questionnaire), how much they considered different sources responsible for the injustice they experienced (i.e. A newly developed inventory), perceived burden (i.e. The Zarit Burden Interview), distress (i.e. The Depression, Anxiety, and Stress Scale), and anger (i.e. The Hostility subscale of the Symptom Checklist-90-Revised).

RESULTS:

The findings showed that caregiving demands are significantly related to perceived injustice in family caregivers (r = .44; P < .001). Only a small group of family caregivers considered the patient or themselves responsible, but more than half of the caregivers considered healthcare providers at least somewhat responsible for the unjust situation. Finally, perceived injustice mediated the association between caregiving demands and burden (b = .11, CI: .04-.23) and distress (b = .05, CI: .006-.12), but not anger (b = .008, CI: -.01-.06).

CONCLUSION:

The findings suggest that perceived injustice plays an important role in the well-being of family caregivers and caregivers' well-being may be improved by changing their perceptions about their caregiving tasks and their condition.

KEYWORDS:

Injustice; chronic pain; demands; distress; family caregivers

PMID:
27127200
DOI:
10.1177/0269215516643846
[Indexed for MEDLINE]

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