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Neuromuscul Disord. 2016 Apr-May;26(4-5):261-3. doi: 10.1016/j.nmd.2016.04.001.

Registries versus tertiary care centers: How do we measure standards of care in Duchenne muscular dystrophy?

Author information

1
Child Neurology Unit, Catholic University, Largo Gemelli, 00168 Roma, Italy; Nemo Rome, Policlinico Gemelli, Largo Gemelli, 00168 Roma, Italy.
2
Besta Neurological Institute, Milan, Italy.
3
Stella Maris Institute , Pisa, Italy.
4
"C. Mondino" Foundation, Pavia, Italy.
5
Bambino Gesu Pediatric Hospital, Rome, Italy.
6
Gaslini Institute, Genova, Italy.
7
Policlinico, Milan, Italy.
8
Eugenio Medea, Bosisio Parini, Italy.
9
Nemo Centre, Milan, Italy.
10
Nemo Sud Clinical Centre and University of Messina, Messina, Italy.
11
University of Turin, Turin, Italy.
12
University of Padua, Padua, Italy.
13
IRCCS Istituto delle Scienze Neurologiche, Bologna, Italy.
14
II University of Naples , Naples, Italy.
15
S Raffaele Hospital, Milan, Italy.
PMID:
27087610
DOI:
10.1016/j.nmd.2016.04.001
[Indexed for MEDLINE]

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