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Telemed J E Health. 2016 Jul;22(7):590-8. doi: 10.1089/tmj.2015.0191. Epub 2016 Feb 17.

National Randomized Controlled Trial of Virtual House Calls for People with Parkinson's Disease: Interest and Barriers.

Author information

1
1 Department of Neurology, Rochester, New York.
2
2 CHET, University of Rochester Medical Center , Rochester, New York.
3
3 Duke University School of Medicine , Durham, North Carolina.
4
4 Department of Biostatistics, University of Rochester , Rochester, New York.
5
5 National Parkinson Foundation , Miami, Florida.
6
6 Division of Geriatric Medicine and Gerontology, Department of Medicine, Johns Hopkins University School of Medicine , Baltimore, Maryland.
7
7 Simone Consulting , Sunnyvale, California.
8
8 Department of Neurology, Philadelphia, Pennsylvania.
9
9 Department of Biostatistics and Epidemiology, University of Pennsylvania , Philadelphia, Pennsylvania.
10
10 Department of Neurology, University of California San Francisco , San Francisco, California.
11
11 Northwest Neurological, PLLC , Spokane, Washington.
12
12 Parkinson Center and Movement Disorders Program, Oregon Health and Science University , Portland, Oregon.
13
13 Department of Neurology, Baylor College of Medicine , Houston, Texas.
14
14 Department of Neurology and Neurosurgery, Johns Hopkins University , Baltimore, Maryland.
15
15 Department of Neurology, Georgia Regents University , Augusta, Georgia .
16
16 Department of Neurology, Duke Medical Center , Durham, North Carolina.
17
17 Department of Neurology, Massachusetts General Hospital , Boston, Massachusetts.
18
18 Struthers Parkinson's Center , Golden Valley, Minnesota.
19
19 Department of Neurology, Beth Israel Deaconess Medical Center , Boston, Massachusetts.
20
20 Department of Neurology, University of Miami , Miami, Florida.
21
21 Department of Neurology, Northwestern University , Evanston, Illinois.
22
22 The Feinstein Institute for Medical Research, North Shore-LIJ Health System , Manhasset, New York.
23
23 Department of Neurology, Medical University of South Carolina , Charleston, South Carolina.
24
24 Department of Neurology, University of Kansas Medical Center , Kansas City, Kansas.
25
25 Parkinson's Institute , Sunnyvale, California.
26
26 Department of Neurology, Mayo Clinic , Rochester, Minnesota.
27
27 Center for Information Technology Research in the Interest of Society, University of California , Berkeley, California.
28
28 Health Informatics Centre, Karolinska Institute , Stockholm, Sweden .
29
29 PatientsLikeMe, Cambridge, Massachusetts .
30
30 West Health Institute , La Jolla, California.

Abstract

BACKGROUND:

Delivering specialty care remotely directly into people's homes can enhance access for and improve the healthcare of individuals with chronic conditions. However, evidence supporting this approach is limited.

MATERIALS AND METHODS:

Connect.Parkinson is a randomized comparative effectiveness study that compares usual care of individuals with Parkinson's disease in the community with usual care augmented by virtual house calls with a Parkinson's disease specialist from 1 of 18 centers nationally. Individuals in the intervention arm receive four virtual visits from a Parkinson's disease specialist over 1 year via secure, Web-based videoconferencing directly into their homes. All study activities, including recruitment, enrollment, and assessments, are conducted remotely. Here we report on interest, feasibility, and barriers to enrollment in this ongoing study.

RESULTS:

During recruitment, 11,734 individuals visited the study's Web site, and 927 unique individuals submitted electronic interest forms. Two hundred ten individuals from 18 states enrolled in the study from March 2014 to June 2015, and 195 were randomized. Most participants were white (96%) and college educated (73%). Of the randomized participants, 73% had seen a Parkinson's disease specialist within the previous year.

CONCLUSIONS:

Among individuals with Parkinson's disease, national interest in receiving remote specialty care directly into the home is high. Remote enrollment in this care model is feasible but is likely affected by differential access to the Internet.

KEYWORDS:

Parkinson's disease; access to care; chronic conditions; home healthcare; randomized controlled trial; specialists; telemedicine; videoconferencing

PMID:
26886406
PMCID:
PMC4939367
DOI:
10.1089/tmj.2015.0191
[Indexed for MEDLINE]
Free PMC Article

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