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J Law Med Ethics. 2015 Fall;43(3):569-75. doi: 10.1111/jlme.12300.

Considerations for Returning Research Results to Culturally Diverse Participants and Families of Decedents.

Author information

1
Assistant Professor in the Center for Biomedical Ethics and Society and in the Departments of Pediatrics and Anthropology at Vanderbilt University. She received her Ph.D. in genetics from Stanford University and completed a postdoctoral fellowship at the Stanford Center for Biomedical Ethics. She is Diné from the Navajo Nation.

Abstract

There has been considerable debate on which genomic research results to return to participants and when those results should be returned, but little attention to how those results should be returned, especially to minority and culturally diverse participants. This paper explores the cultural and ethical considerations around returning research results to participants and families of culturally diverse backgrounds, with a special focus on considerations when the research participant is deceased, and raises points for further discussion.

PMID:
26479567
PMCID:
PMC4617668
DOI:
10.1111/jlme.12300
[Indexed for MEDLINE]
Free PMC Article

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