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J Pediatr. 2016 Jan;168:226-31.e1. doi: 10.1016/j.jpeds.2015.09.020. Epub 2015 Oct 23.

When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority.

Author information

  • 1Department of Pediatrics, University of Louisville School of Medicine, Louisville, KY. Electronic address: kyle.brothers@louisville.edu.
  • 2Division of Genetics and Genomics, Boston Children's Hospital; The Manton Center for Orphan Disease Research, Boston Children's Hospital; Department of Pediatrics, Harvard Medical School, Boston, MA.
  • 3Center for Bioethics and Social Sciences in Medicine, University of Michigan, Ann Arbor, MI.
  • 4Ethics Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH.
  • 5Department of Medicine, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA.
  • 6Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN.
  • 7Mindich Child Health and Development Institute, Departments of Pediatrics and Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York, NY.
  • 8Department of Medical Ethics and Health Policy, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA.
  • 9Department of Communication, University of Cincinnati, Cincinnati, OH.
  • 10Divisions of General Internal Medicine and Health Care and Policy Research, and the Mayo Biomedical Ethics Program, Mayo Clinic, Rochester, MN.
  • 11Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX.
  • 12Texas Children's Cancer Center and Department of Pediatrics, Baylor College of Medicine, Houston, TX.
  • 13Henry Hood Center for Health Research, Geisinger Health System, Danville, PA.
  • 14Division of Genetics and Genomics, Boston Children's Hospital.
  • 15Department of Pediatrics, University of Washington.
  • 16Treuman Katz Center for Pediatric Ethics, Seattle Children's Hospital, Seattle, WA.
PMID:
26477867
PMCID:
PMC4824174
DOI:
10.1016/j.jpeds.2015.09.020
[PubMed - indexed for MEDLINE]
Free PMC Article

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