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J Pediatr. 2016 Jan;168:226-31.e1. doi: 10.1016/j.jpeds.2015.09.020. Epub 2015 Oct 23.

When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority.

Author information

1
Department of Pediatrics, University of Louisville School of Medicine, Louisville, KY. Electronic address: kyle.brothers@louisville.edu.
2
Division of Genetics and Genomics, Boston Children's Hospital; The Manton Center for Orphan Disease Research, Boston Children's Hospital; Department of Pediatrics, Harvard Medical School, Boston, MA.
3
Center for Bioethics and Social Sciences in Medicine, University of Michigan, Ann Arbor, MI.
4
Ethics Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH.
5
Department of Medicine, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA.
6
Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN.
7
Mindich Child Health and Development Institute, Departments of Pediatrics and Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York, NY.
8
Department of Medical Ethics and Health Policy, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA.
9
Department of Communication, University of Cincinnati, Cincinnati, OH.
10
Divisions of General Internal Medicine and Health Care and Policy Research, and the Mayo Biomedical Ethics Program, Mayo Clinic, Rochester, MN.
11
Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX.
12
Texas Children's Cancer Center and Department of Pediatrics, Baylor College of Medicine, Houston, TX.
13
Henry Hood Center for Health Research, Geisinger Health System, Danville, PA.
14
Division of Genetics and Genomics, Boston Children's Hospital.
15
Department of Pediatrics, University of Washington.
16
Treuman Katz Center for Pediatric Ethics, Seattle Children's Hospital, Seattle, WA.
PMID:
26477867
PMCID:
PMC4824174
DOI:
10.1016/j.jpeds.2015.09.020
[Indexed for MEDLINE]
Free PMC Article

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