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Qual Life Res. 2016 Mar;25(3):687-97. doi: 10.1007/s11136-015-1100-x. Epub 2015 Sep 9.

Impact of Alzheimer's disease on the family caregiver's long-term quality of life: results from an ALSOVA follow-up study.

Author information

1
Department of Nursing Science, University of Eastern Finland, P.O.Box 1627, 70211, Kuopio, Finland. tarja.valimaki@uef.fi.
2
Unit of Nursing Development, Clinical Education and Research, Kuopio University Hospital (KYS), P.O.Box 100, 70029, Kuopio, Finland. tarja.valimaki@uef.fi.
3
Pharmacoeconomics and Outcomes Research Unit, School of Pharmacy, University of Eastern Finland, P.O.Box 1627, 70211, Kuopio, Finland. janne.martikainen@uef.fi.
4
Department of Geriatrics, Institute of Public Health and Clinical Nutrition, University of Eastern Finland, P.O.Box 1627, 70211, Kuopio, Finland. kristiina.hongisto@kuh.fi.
5
Pharmacoeconomics and Outcomes Research Unit, School of Pharmacy, University of Eastern Finland, P.O.Box 1627, 70211, Kuopio, Finland.
6
Department of Public Health, University of Helsinki, PL 41, 00014, Helsinki, Finland. harri.sintonen@helsinki.fi.
7
Institute of Clinical Medicine, Neurology, University of Eastern Finland, P.O.Box 1627, 70211, Kuopio, Finland. anne.koivisto@kuh.fi.
8
Neurology of Neuro Center, Kuopio University Hospital (KYS), P.O.Box 100, 70029, Kuopio, Finland. anne.koivisto@kuh.fi.

Abstract

PURPOSE:

To examine caregivers' health-related quality of life (HRQoL) and well-being during the first 3 years after their family member's Alzheimer's disease (AD) diagnosis and assessed the relationship between caregivers' HRQoL, well-being, and the severity of AD. Further, to compare of caregivers' HRQoL to general population.

METHODS:

Longitudinal design (36 months) after AD diagnosis of 236 caregiver-patient dyads. Linear regression was used to assess age- and gender-adjusted association between repeated measurements of caregivers' HRQoL and the severity of AD. For comparison with general population, the National Health 2011 Health Examination Survey data was utilized.

RESULTS:

Caregivers had significantly lower HRQoL than age- and gender-standardized counterparts. Severity of AD was significantly (p < 0.05) associated with the mobility and depression dimensions of caregiver's HRQoL but not with the total HRQoL index score.

CONCLUSIONS:

Caregivers' HRQoL seems to deteriorate earlier than previously noted. The severity of AD has not that great impact on caregiver's HRQoL as assumed.

KEYWORDS:

15D; Alzheimer’s disease; Family caregivers; Health-related quality of life; Psychological distress

PMID:
26350541
DOI:
10.1007/s11136-015-1100-x
[Indexed for MEDLINE]

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