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J Comp Eff Res. 2015 Aug;4(4):351-7. doi: 10.2217/cer.15.24.

IMPACCT Kids' Care: a real-world example of stakeholder involvement in comparative effectiveness research.

Author information

1
Department of Family Medicine, Oregon Health & Science University, 3181 SW Sam Jackson Park Rd, Portland, OR 97239, USA.
2
OCHIN, Inc., 1881 SW Naito Parkway, Portland, OR 97201, USA.
3
Department of Medical Informatics & Clinical Epidemiology, Oregon Health & Science University, 3181 SW Sam Jackson Park Rd, Portland, OR 97239, USA.
4
Oregon Clinical & Translational Research Institute, SN4N, 3181 SW Sam Jackson Park Rd, Portland, OR 97239, USA.
5
Department of Family Medicine, The Ohio State University, 2231 N. High St, Columbus, OH 43201, USA.
6
Oregon Health Authority Office of Health Analytics, 421 SW Oak St, Suite 850, Portland, OR 97204, USA.

Abstract

The Patient-Centered Outcomes Research Institute has accelerated conversations about the importance of actively engaging stakeholders in all aspects of comparative effectiveness research (CER). Other scientific disciplines have a history of stakeholder engagement, yet few empirical examples exist of how these stakeholders can inform and enrich CER. Here we present a case study which includes the methods used to engage stakeholders, what we learned from them, and how we incorporated their ideas in a CER project. We selected stakeholders from key groups, built relationships with them and collected their feedback through interviews, observation and ongoing meetings during the four research process phases: proposal development, adapting study methods, understanding the context and information technology tool design and refinement.

KEYWORDS:

community networks; comparative effectiveness research; consumer participation; patient engagement; patient-centered outcomes research

PMID:
26274796
PMCID:
PMC4538706
DOI:
10.2217/cer.15.24
[Indexed for MEDLINE]
Free PMC Article

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