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J Pediatr Nurs. 2015 Sep-Oct;30(5):691-9. doi: 10.1016/j.pedn.2015.05.009. Epub 2015 Jul 22.

Self-Management and Transition Readiness Assessment: Development, Reliability, and Factor Structure of the STARx Questionnaire.

Author information

1
The University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC. Electronic address: maria_ferris@med.unc.edu.
2
The University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC.
3
Wake Forest University, Winston-Salem, NC; Victory Junction Camp, Randleman, NC.
4
The University of North Carolina at Chapel Hill School of Public Health, Chapel Hill, NC.
5
Levine Children's Hospital at Carolinas Medical Center, Charlotte, NC.
6
Nationwide Children's Hospital, Columbus, OH; The Ohio State University, Columbus, OH.
7
Escuela de Medicina, Universidad Panamericana.
8
Hospital Infantil de México Federico Gómez.

Abstract

INTRODUCTION:

The Self-Management and Transition to Adulthood with Rx=Treatment (STARx) Questionnaire was developed to collect information on self-management and health care transition (HCT) skills, via self-report, in a broad population of adolescents and young adults (AYAs) with chronic conditions.

METHODS:

Over several iterations, the STARx questionnaire was created with AYA, family, and health provider input. The development and pilot testing of the STARx Questionnaire took place with the assistance of 1219 AYAs with different chronic health conditions, in multiple institutions and settings over three phases: item development, pilot testing, reliability and factor structuring.

RESULTS:

The three development phases resulted in a final version of the STARx Questionnaire. The exploratory factor analysis of the third version of the 18-item STARx identified six factors that accounted for about 65% of the variance: Medication management, Provider communication, Engagement during appointments, Disease knowledge, Adult health responsibilities, and Resource utilization. Reliability estimates revealed good internal consistency and temporal stability, with the alpha coefficient for the overall scale being .80. The STARx was developmentally sensitive, with older patients scoring significantly higher on nearly every factor than younger patients.

CONCLUSION:

The STARx Questionnaire is a reliable, self-report tool with adequate internal consistency, temporal stability, and a strong, multidimensional factor structure. It provides another assessment strategy to measure self-management and transition skills in AYAs with chronic conditions.

KEYWORDS:

Adolescents; Chronic conditions; Measure; Self-management; Transition; Young adults

PMID:
26209873
DOI:
10.1016/j.pedn.2015.05.009
[Indexed for MEDLINE]
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