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Am J Hum Genet. 2015 Jul 2;97(1):6-21. doi: 10.1016/j.ajhg.2015.05.022.

Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents.

Author information

1
University of Utah, Salt Lake City, UT 84112, USA. Electronic address: jeffrey.botkin@hsc.utah.edu.
2
Baylor College of Medicine, Houston, TX 77030, USA.
3
University of North Carolina at Chapel Hill, Chapel Hill, NC 27599, USA.
4
National Human Genome Research Institute, Bethesda, MD 20892, USA.
5
University of Toronto, Toronto, ON M5B 1T8, Canada; Li Ka Shing Knowledge Institute, St. Michael's Hospital, Toronto, ON M5B 1W8, Canada.
6
Boston Children's Hospital, Boston, MA 02115, USA.
7
Johns Hopkins University, Baltimore, MD 21205, USA.
8
Stanford University, Stanford, CA 94305, USA.
9
Cincinnati Children's Hospital Medical Center, Cincinnati, OH 45229, USA.
10
Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA.
11
Seattle Children's Hospital, Seattle, WA 98101, USA.
12
American Society of Human Genetics, Bethesda, MD 20814, USA.

Erratum in

  • Am J Hum Genet. 2015 Sep 3;97(3):501.

Abstract

In 1995, the American Society of Human Genetics (ASHG) and American College of Medical Genetics and Genomics (ACMG) jointly published a statement on genetic testing in children and adolescents. In the past 20 years, much has changed in the field of genetics, including the development of powerful new technologies, new data from genetic research on children and adolescents, and substantial clinical experience. This statement represents current opinion by the ASHG on the ethical, legal, and social issues concerning genetic testing in children. These recommendations are relevant to families, clinicians, and investigators. After a brief review of the 1995 statement and major changes in genetic technologies in recent years, this statement offers points to consider on a broad range of test technologies and their applications in clinical medicine and research. Recommendations are also made for record and communication issues in this domain and for professional education.

PMID:
26140447
PMCID:
PMC4570999
DOI:
10.1016/j.ajhg.2015.05.022
[Indexed for MEDLINE]
Free PMC Article
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