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Clin Transl Sci. 2015 Oct;8(5):502-5. doi: 10.1111/cts.12278. Epub 2015 May 25.

Public Interest in Medical Research Participation: Does It Matter if Patients or Community Members Have Helped Design the Study?

Author information

1
Department of Veterans Affairs, VA Center for Clinical Management Research, Ann Arbor VA Healthcare System, Ann Arbor, Michigan, USA.
2
Department of Emergency Medicine, University of Michigan, Ann Arbor, Michigan, USA.
3
Child Health Evaluation and Research (CHEAR) Unit, Division of General Pediatrics, University of Michigan, Ann Arbor, Michigan, USA.
4
Robert Wood Johnson Foundation Clinical Scholars Program, University of Michigan, Ann Arbor, Michigan, USA.
5
Division of General Medicine, Gerald R. Ford School of Public Policy and School of Public Health, University of Michigan, Ann Arbor, Michigan, USA.
6
Institute for Healthcare Policy and Innovation, University of Michigan, Ann Arbor, Michigan, USA.

Abstract

PURPOSE:

We determined national levels of public participation in medical research study design. We compared public interest in medical research participation (MRP) in studies overall, versus studies explicitly designed with public involvement.

METHOD:

Cross-sectional household survey of US population in June 2013. Descriptive statistics estimated participation in medical research study design. Chi-square test compared levels of interest in MRP if respondent knew patients or community members helped design the study.

RESULTS:

Of 2,048 respondents (participation rate 60%), 5% knew someone who had helped design a medical research study. There was no association between having known someone or personal participation in study design and willingness to engage in MRP. Although the overall proportion of respondents who would consider MRP initially (51%) was similar to the proportion who would consider MRP with community member involvement in study design (49%), the changes in respondents' views across the different scenarios were significantly greater than what would have been expected by chance.

CONCLUSIONS:

We found similar levels of interest in MRP whether or not the public is involved in medical research study design. This finding may indicate that public involvement in study design, like community-based participatory research, may not affect overall rates of MRP.

KEYWORDS:

clinical trial design; patient engagement; research participation

PMID:
26009983
PMCID:
PMC5351068
DOI:
10.1111/cts.12278
[Indexed for MEDLINE]
Free PMC Article

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