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Indian J Med Ethics. 2015 Apr-Jun;12(2):110-3. Epub 2015 Mar 16.

Ethics and equity in research priority-setting: stakeholder engagement and the needs of disadvantaged groups.

Author information

1
Cochrane Agenda and Priority Setting Methods Group; BioMedical Genomics Centre, F-140, Rail Vihar, 480, Madurdaha, Kolkata 700 107, West Bengal, India.
2
Special Technical Assistant, Fulbright-Clinton Fellow, Nepal Health Research Council, Government of Nepal, Ministry of Health and Population, Nepal.
3
Columbia University, College of Physicians and Surgeons, New York, United States.
4
Cochrane Agenda and Priority Setting Methods Group; Centre for Global Health, Bruyère Research Institute, University of Ottawa, Ottawa, Ontario, Canada.
5
Jack Brockhoff Child Health and Wellbeing Program, McCaughey Vic Health Centre, Melbourne School of Population and Global Health; Cochrane Agenda and Priority Setting Methods Group University of Melbourne, Victoria, Australia.
6
Departments of Family Medicine and Epidemiology and Community Medicine, Primary Care Research Group and Equity Methods Group; WHO Guideline Review Committee and Strategic Advisory Group of Experts (SAGE) on Immunization Bruyere Research Institute, University of Ottawa, Ontario, Canada; WHO, Geneva, Switzerland.
7
Department of Dermatology; Department of Epidemiology, Colorado School of Public Health, University of Colorado Anschutz Medical Campus, Aurora, United States.
8
Ethical Review and M&E, Nepal Health Research Council, Nepal.
9
Professor of Public Policy, Social Science Research Unit and EPPI-Centre; Cochrane Agenda and Priority Setting Methods Group, UCL Institute of Education, United Kingdom.
10
Epidemiology Research Unit; Caribbean Branch, University of West Indies, Mona Kingston, Jamaica; US Cochrane Center, Jamaica.
11
Peninsula Dental School; Cochrane Agenda and Priority Setting Methods Group, Plymouth University, Plymouth, United Kingdom.
12
Cochrane Agenda and Priority Setting Methods Group, Crowe Associates Ltd, United Kingdom.
13
Columbia Presbyterian Hospital, New York, United States.
14
Department of Diagnostic, Clinical and Public Health Medicine - Italian Cochrane Centre; Cochrane Agenda and Priority Setting Methods Group University of Modena and Reggio Emilia, Modena, Italy.

Abstract

A transparent and evidence-based priority-setting process promotes the optimal use of resources to improve health outcomes. Decision-makers and funders have begun to increasingly engage representatives of patients and healthcare consumers to ensure that research becomes more relevant. However, disadvantaged groups and their needs may not be integrated into the priority-setting process since they do not have a "political voice" or are unable to organise into interest groups. Equitable priority-setting methods need to balance patient needs, values, experiences with population-level issues and issues related to the health system.

PMID:
25797432
DOI:
10.20529/IJME.2015.030
[Indexed for MEDLINE]
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