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J Rheumatol. 2015 Apr;42(4):702-5. doi: 10.3899/jrheum.141122. Epub 2015 Feb 15.

The cost of research: a survey of participating sites in a nationwide registry.

Author information

1
From The Children's Hospital of Philadelphia, Division of Rheumatology, Philadelphia, Pennsylvania, USA.J.L. Tress, BA, CCRP; D.D. Sherry, MD, The Children's Hospital of Philadelphia, Division of Rheumatology. tressj@email.chop.edu.
2
From The Children's Hospital of Philadelphia, Division of Rheumatology, Philadelphia, Pennsylvania, USA.J.L. Tress, BA, CCRP; D.D. Sherry, MD, The Children's Hospital of Philadelphia, Division of Rheumatology.

Abstract

OBJECTIVE:

Much attention has been placed upon decreasing costs of clinical research. However, little has been studied about the effects on research completion.

METHODS:

A survey was sent to all registry investigators and coordinators to determine the cost of enrollment in a national registry, whether sites had to supplement using their own funds, and whether the cost affected enrollment.

RESULTS:

Results indicate that a majority of sites supplemented enrollment with their own funding (88%) and diagnoses requiring a lot of time to enroll were avoided.

CONCLUSION:

This survey showed that reimbursement rates were well below the costs of enrollment.

KEYWORDS:

JUVENILE RHEUMATOID DISEASES; REGISTRIES; SURVEY; TRIAL COSTS

PMID:
25684769
DOI:
10.3899/jrheum.141122
[Indexed for MEDLINE]

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