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Psychiatr Prax. 2016 Apr;43(3):160-4. doi: 10.1055/s-0034-1387517. Epub 2015 Feb 2.

[Psychiatric and Social Aspects of Patients with Fragile X Syndrome].

[Article in German]

Author information

1
Institut für Klinische Pharmakologie. Medizinische Fakultät, Technische Universität Carl Gustav Carus Dresden.
2
Abt. Psychiatrische Therapie für Menschen mit Geistiger Behinderung, Isar Amper Klinikum gGmbH, Klinikum München Ost, Haar.
3
Experimental and Clinical Research, Charité, Campus Berlin-Buch, Klinik für Psychiatrie und Psychotherapie, Charité, Campus Berlin-Mitte.
4
Rheinhessen Fachklinik Mainz, Kinder- und Jugendpsychiatrie, Mainz.
5
Zentrum für Kinder- und Jugendmedizin, Sozialpädiatrisches Zentrum, Städtisches Krankenhaus Dresden-Neustadt.
6
Medizinische Abteilung Novartis Pharma GmbH, Nürnberg.
7
Zentrum für Kinderneurologie und Sozialpädiatrie, Rheinhessen Fachklinik Mainz.
8
Berliner Behandlungszentrum der Abteilung für Psychiatrie, Psychotherapie und Psychosomatik, Evangelisches Krankenhaus Königin Elisabeth Herzberge GmbH, Berlin.
9
Klinik für Psychiatrie, Neurologie, Psychosomatik und Psychotherapie im Kindes- und Jugendalter der Universitätsmedizin Rostock.

Abstract

OBJECTIVE:

The goal of the study was to describe the burden of psychosocial risks, of mental illnesses and the ways of treatment of patients with fragile X syndrome (FRX).

METHOD:

Data from a sample of 46 FRX-patients stemming from a prospective multicenter (N = 12) registry study (EXPLAIN) were analyzed with regard to psychosocial burden and treatment.

RESULTS:

More than 50 % of all participants reported about relatives suffering from FRX, too. The majority of participants did not finish school and was suffering from one or another kind of mental problems. Younger participants (< 18 yrs.) tended to suffer from expansive disorders. Older participants were rather burdened by internalizing symptoms and disorders. Disorders were usually treated by psychotropic drugs added by logopedic therapies and occupational therapies (more than once a month). In our sample 90.6 % of younger and more than 64.3 % of older patients were still living with their parents.

CONCLUSIONS:

Patients with FRX often suffer from additional mental disorders and should be diagnosed and treated early.

PMID:
25643039
DOI:
10.1055/s-0034-1387517
[Indexed for MEDLINE]

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