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Qual Health Res. 2015 Dec;25(12):1623-36. doi: 10.1177/1049732314566328. Epub 2015 Jan 6.

"Getting the Left Right": The Experience of Hemispatial Neglect After Stroke.

Author information

1
University of Iceland, Reykjavik, Iceland The National University Hospital of Iceland, Reykjavik, Iceland klinke@simnet.is.
2
University of Copenhagen, Denmark.
3
University of Iceland, Reykjavik, Iceland The National University Hospital of Iceland, Reykjavik, Iceland.
4
University of Iceland, Reykjavik, Iceland.

Abstract

We used a phenomenological approach to gain insight into the experiences of self, other, and world in patients with hemispatial neglect within the first month following stroke. Comprehensive descriptions of circumstances were conjoined with open-ended interviews of 12 participants. The neglect experience was captured in the overarching theme, "getting the left right," which encompasses the two subthemes of (a) surreal awareness of the left and (b) emergence of a different world. Patients had unclear perceptions of their own body and surroundings, their attention was brittle, and they encountered bewildering reactions from other people. They simultaneously pursued the ineffable neglected space and searched for coherence. The vulnerability, loss, and conflicting perceptions that patients with neglect face should be acknowledged and alleviation sought. Facilitating methods should provide additional opportunities for patients to communicate their experiences. We underscore the importance of readjusting the current approaches of neglect and emphasizing meaningfulness in professional guidance.

KEYWORDS:

body image; embodiment / bodily experiences; interviews; lived experience; neurology; nursing; observation, participant; phenomenology; qualitative analysis; stroke

PMID:
25563629
DOI:
10.1177/1049732314566328
[Indexed for MEDLINE]

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