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Am J Hosp Palliat Care. 2016 Jun;33(5):477-82. doi: 10.1177/1049909114565110. Epub 2014 Dec 30.

Managing Advanced Progressive Supranuclear Palsy and Corticobasal Degeneration in a Palliative Care Unit: Admission Triggers and Outcomes.

Author information

1
Hospice Care DaSein, München, Germany Insitute for Interdisciplinary Research in Palliative Care, Paracelsus Medical University, Salzburg, Austria dr.j.buekki@hospiz-da-sein.de.
2
Insitute for Interdisciplinary Research in Palliative Care, Paracelsus Medical University, Salzburg, Austria Department of Palliative Care, Klinikum der Ludwig-Maximilians-Universität, Campus Großhadern, München, Germany Department of Neurology, Klinikum der Ludwig-Maximilians-Universität, Campus Großhadern, München, Germany.

Abstract

BACKGROUND:

Progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD) are characterized by rapid deterioration and a fatal outcome.

OBJECTIVES:

Admission triggers, treatment efficacy, and care patterns.

METHODS:

Retrospective analysis of patients with PSP/CBD admitted to an inpatient specialized palliative care service.

RESULTS:

In 38 patients, there were 63 admissions for swallowing difficulties, falls, pain, impaired communication, cognitive/mood disturbances, respiratory symptoms, and infection. Mean length of stay was 11.6 days. Treatment response was variable. In 68%, of admission episodes there was stabilization or improvement, 75% were discharged home. In case of readmission, the mean interval has been 9.7 months. Time since diagnosis and admission triggers were not associated with outcome or death.

CONCLUSION:

Patients showed high symptom load contrasting with discharge rates and subsequent health care utilization. Brief multidisciplinary interventions might be helpful to preserve autonomy.

KEYWORDS:

corticobasal degeneration; health care utilization; late phase; palliative care; progressive supranuclear palsy; symptom management

PMID:
25550443
DOI:
10.1177/1049909114565110
[Indexed for MEDLINE]

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