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J Natl Cancer Inst Monogr. 2014 Nov;2014(49):198-209. doi: 10.1093/jncimonographs/lgu018.

Evaluation of North American Association of Central Cancer Registries' (NAACCR) data for use in population-based cancer survival studies.

Author information

1
Division of Cancer Prevention and Control, National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention, Atlanta, GA (HKW, RJW); Cancer Data Registry of Idaho, Boise, ID (CJJ); Division of Cancer Control and Population Sciences, National Cancer Institute, National Institutes of Health, Bethesda, MD (ABM); Cancer Care Manitoba, Winnipeg, MB, Canada (DT); Cancer Care Ontario, Toronto, ON, Canada (DN); Georgia Center for Cancer Statistics, Emory University, Atlanta, GA (KCW). hbw4@cdc.gov.
2
Division of Cancer Prevention and Control, National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention, Atlanta, GA (HKW, RJW); Cancer Data Registry of Idaho, Boise, ID (CJJ); Division of Cancer Control and Population Sciences, National Cancer Institute, National Institutes of Health, Bethesda, MD (ABM); Cancer Care Manitoba, Winnipeg, MB, Canada (DT); Cancer Care Ontario, Toronto, ON, Canada (DN); Georgia Center for Cancer Statistics, Emory University, Atlanta, GA (KCW).

Abstract

Follow-up procedures vary among cancer registries in North America. US registries are funded by the Surveillance, Epidemiology, and End Results (SEER) Program and/or the National Program of Cancer Registries (NPCR). SEER registries ascertain vital status and date of last contact to meet follow-up standards. NPCR and Canadian registries primarily conduct linkages with local and national death records to ascertain deaths. Data on patients diagnosed between 2002 through 2006 and followed through 2007 were obtained from 51 registries. Registries that met follow-up standards or, at a minimum, conducted linkages with local and national death records had comparable age-standardized five-year survival estimates (all sites and races combined): 63.9% SEER, 63.1% NPCR, and 62.6% Canada. Estimates varied by cancer site. Survival data from registries using different follow-up procedures are comparable if death ascertainment is complete and all nondeceased patients are presumed to be alive to the end of the study period.

PMID:
25417233
PMCID:
PMC4559228
DOI:
10.1093/jncimonographs/lgu018
[Indexed for MEDLINE]
Free PMC Article

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