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Hum Genomics. 2014 Oct 22;8:18. doi: 10.1186/s40246-014-0018-7.

Informed consent and ethical re-use of African genomic data.

Author information

1
South African National Bioinformatics Institute/Medical Research Council of South Africa Bioinformatics Unit, University of the Western Cape, Private Bag X17, Bellville, 7535, South Africa. galen@sanbi.ac.za.
2
National Human Genome Research Institute, National Institutes of Health, Building 12A, Room 4047, 12 South Drive, MSC 5635, Bethesda, MD, 20892-5635, USA. adeyemoa@mail.nih.gov.
3
South African National Bioinformatics Institute/Medical Research Council of South Africa Bioinformatics Unit, University of the Western Cape, Private Bag X17, Bellville, 7535, South Africa. nicki@sanbi.ac.za.

Abstract

Rapid advances in human genomic research are increasing the availability of genomic data for secondary analysis. Particularly in the case of vulnerable African populations, ethics and informed consent processes need to be transparent--both to ensure participant protection, as well as to share skills and to evolve best practice for informed consent from a shared knowledge base. An open dialogue between all stakeholders can facilitate this.

PMID:
25339190
PMCID:
PMC4445680
DOI:
10.1186/s40246-014-0018-7
[Indexed for MEDLINE]
Free PMC Article

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