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Soc Work Health Care. 2014;53(7):640-58. doi: 10.1080/00981389.2014.916776.

Families with children with medical complexity and self-management of care: a systematic review of the literature.

Author information

1
a Division of Developmental and Behavioral Sciences , Children's Mercy , Kansas City , Missouri , USA.

Abstract

This review analyzes the quantitative literature on children with medical complexity (CMC). Using the Pediatric Self-Management Model, evidence is summarized into facilitators and barriers to self-management. Current quantitative research focuses on the caregiver burden in families with CMC. A model for social work with families with CMC was introduced in response to these findings. A re-envisioned model allows the child with medical complexity to be seen as whole rather than focusing on typically deficit-based areas of medical specialty or service provision.

KEYWORDS:

children with medical complexity; chronic illness; disability; medically fragile; self-management; social work; technology dependent

PMID:
25133298
DOI:
10.1080/00981389.2014.916776
[Indexed for MEDLINE]

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