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NPJ Prim Care Respir Med. 2014 Jul 10;24:14021. doi: 10.1038/npjpcrm.2014.21.

Development of the Assessment of Burden of COPD tool: an integrated tool to measure the burden of COPD.

Author information

1
CAPHRI School for Public Health and Primary Care, Department of Family Medicine, Maastricht University, Maastricht, The Netherlands.
2
Department of Pulmonology, Sint Franciscus Gasthuis, Rotterdam, The Netherlands.
3
Department of Public Health and Primary Care, Leiden University Medical Centre, Leiden, The Netherlands.
4
1] Department of General Practice, University of Groningen, University Medical Centre Groningen, Groningen, The Netherlands [2] GRIAC Research Institute, University of Groningen, University Medical Centre Groningen, Groningen, The Netherlands.
5
Institute for Health Policy and Management/Institute for Medical Technology Assessment, Erasmus University Rotterdam, Rotterdam, The Netherlands.
6
Department of Pulmonary Diseases and Groningen Research Institute for Asthma and COPD (GRIAC), University of Groningen, University Medical Centre Groningen, Groningen, The Netherlands.
7
Huisartsenzorg IJsselstein, location 't Steyn, IJsselstein, The Netherlands.
8
Lung Foundation Netherlands, Amersfoort, The Netherlands.
9
Department of Pulmonary Diseases, University Medical Centre Nijmegen, Nijmegen, The Netherlands.
10
1] CAPHRI School for Public Health and Primary Care, Department of Family Medicine, Maastricht University, Maastricht, The Netherlands [2] PICASSO for COPD, Alkmaar, The Netherlands.

Abstract

In deciding on the treatment plan for patients with chronic obstructive pulmonary disease (COPD), the burden of COPD as experienced by patients should be the core focus. It is therefore important for daily practice to develop a tool that can both assess the burden of COPD and facilitate communication with patients in clinical practice. This paper describes the development of an integrated tool to assess the burden of COPD in daily practice. A definition of the burden of COPD was formulated by a Dutch expert team. Interviews showed that patients and health-care providers agreed on this definition. We found no existing instruments that fully measured burden of disease according to this definition. However, the Clinical COPD Questionnaire meets most requirements, and was therefore used and adapted. The adapted questionnaire is called the Assessment of Burden of COPD (ABC) scale. In addition, the ABC tool was developed, of which the ABC scale is the core part. The ABC tool is a computer program with an algorithm that visualises outcomes and provides treatment advice. The next step in the development of the tool is to test the validity and effectiveness of both the ABC scale and tool in daily practice.

PMID:
25010353
PMCID:
PMC4498164
DOI:
10.1038/npjpcrm.2014.21
[Indexed for MEDLINE]
Free PMC Article

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