1. Epilepsy Behav. 2014 Aug;37:104-9. doi: 10.1016/j.yebeh.2014.06.006. Epub 2014
Jul 8.

Psychosocial and sociodemographic associates of felt stigma in epilepsy.

Leaffer EB(1), Hesdorffer DC(2), Begley C(3).

Author information: 
(1)GH Sergievsky Center, Columbia University, New York, NY, USA.
(2)GH Sergievsky Center, Columbia University, New York, NY, USA; Department of
Epidemiology, Mailman School of Public Health, Columbia University, New York, NY,
USA. Electronic address: dch5@cumc.columbia.edu.
(3)School of Public Health, University of Texas Health Science Center at Houston,
Houston, TX, USA.

BACKGROUND: Lack of a sufficient range in socioeconomic status (SES) in most
prior studies of felt stigma and epilepsy has hampered the ability to better
understand this association.
METHODS: We assessed the burden and associates of felt stigma in 238 individuals 
with prevalent epilepsy aged 18 and older, comparing low SES with high SES.
RESULTS: Reported levels of stigma were higher in low SES than in high SES
(p<0.0001), and all psychosocial variables were associated with stigma, including
depression severity (p<0.0001), knowledge of epilepsy (p=0.006), quality of life 
(p<0.0001), social support (p<0.0001), and self-efficacy (p=0.0009). Stigma was
statistically significantly associated with quality of life in the low SES group 
and with depression severity and social support in the high SES group.
CONCLUSIONS: Low SES alone did not account for felt stigma; rather, we found that
quality of life, depressive symptoms, and social support have the greatest impact
on reported felt stigma in individuals with prevalent epilepsy.

Copyright © 2014 Elsevier Inc. All rights reserved.

DOI: 10.1016/j.yebeh.2014.06.006 
PMID: 25010324  [Indexed for MEDLINE]