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Healthc Policy. 2014 May;9(4):73-89.

"Where do we go from here?" Health system frustrations expressed by patients with multimorbidity, their caregivers and family physicians.

Author information

1
Graduate Student, Institute of Health Policy, Management & Evaluation, University of Toronto, Bridgepoint Collaboratory for Research and Innovation, Bridgepoint Active Healthcare, Toronto, ON.
2
Research Scientist, Bridgepoint Collaboratory for Research and Innovation, Bridgepoint Active Healthcare, Institute of Health Policy, Management & Evaluation, University of Toronto, Toronto, ON.
3
Department of Family and Community Medicine, Primary Care Research Unit, Sunnybrook Health Sciences Centre, Scientist, Institute for Clinical Evaluative Sciences, Toronto, ON.
4
Graduate Student, Institute of Health Policy, Management & Evaluation, University of Toronto, Toronto, ON.
5
Bridgepoint Collaboratory for Research and Innovation, Bridgepoint Active Healthcare, Department of Family and Community Medicine, Primary Care Research Unit, Sunnybrook Health Sciences Centre, Adjunct Scientist, Institute for Clinical Evaluative Sciences, Dalla Lana School of Public Health, University of Toronto, Toronto, ON.
6
Institute of Health Policy, Management & Evaluation, University of Toronto Adjunct Scientist, Institute for Clinical Evaluative Sciences Research Scientist, Toronto Rehabilitation Institute, Toronto, ON.

Abstract

OBJECTIVES:

This study explored the care challenges experienced by older patients with multimorbidity, their informal caregivers and family physicians.

APPROACH:

Semi-structured interviews were conducted with 27 patients, their informal caregivers and family physicians. Qualitative description was used to identify key themes in the interview transcripts.

RESULTS:

Participants experienced many common challenges when managing multimorbidity, including a lack of decision-making support, poor communication and uncoordinated health services. Within these themes, unique perspectives specific to the role of being a patient, caregiver or family physician emerged.

CONCLUSION:

The study adds to a limited evidence base on the experience of patients with multimorbidity. By including the perspectives of their family caregivers and physicians, we provide important insight into the management of multimorbidity and recommend the uptake of specific strategies to address them.

PMID:
24973485
PMCID:
PMC4749886
[Indexed for MEDLINE]
Free PMC Article

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