End-of-life training for paid carers working with people with learning disabilities

Br J Community Nurs. 2014 Apr;19(4):170, 172-6. doi: 10.12968/bjcn.2014.19.4.170.

Abstract

People with learning disabilities are living longer lives. Over the past few years, research has explored the needs of people with learning disabilities, their families and learning disability professionals in relation to end-of-life care and death. However, little is known about the needs of paid carers and their experience of end-of-life care. This article discusses the development, implementation and evaluation of a study day about end-of-life care that was delivered to paid carers on two separate occasions in Berkshire Healthcare NHS Foundation Trust. A total of 43 paid carers attended and the days were well evaluated. The need for further training for paid carers who work with people with learning disabilities at the end of life was highlighted.

MeSH terms

  • Caregivers / education*
  • Disabled Persons*
  • Health Services Needs and Demand
  • Home Nursing*
  • Humans
  • Learning Disabilities / nursing*
  • Palliative Care / methods*
  • Professional-Patient Relations
  • Terminal Care / methods*
  • United Kingdom
  • Workforce