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J Am Med Inform Assoc. 2014 Jul-Aug;21(4):591-5. doi: 10.1136/amiajnl-2014-002744. Epub 2014 May 12.

The ADVANCE network: accelerating data value across a national community health center network.

Author information

1
OCHIN, Inc, Portland, Oregon, USA Department of Family Medicine, Oregon Health and Science University, Portland, Oregon, USA Department of Medical Informatics and Clinical Epidemiology, Oregon Health and Science University, Portland, Oregon, USA.
2
OCHIN, Inc, Portland, Oregon, USA Kaiser Permanente Northwest Center for Health Research, Portland, Oregon, USA.
3
OCHIN, Inc, Portland, Oregon, USA Health Choice Network, Miami, Florida, USA.
4
OCHIN, Inc, Portland, Oregon, USA.
5
Health Choice Network, Miami, Florida, USA.
6
The Fenway Institute, Boston, Massachusetts, USA Harvard Medical School, Boston, Massachusetts, USA HIV Prevention Research, Beth Israel Deaconess Medical Center, Boston, Massachusetts, USA.
7
OCHIN, Inc, Portland, Oregon, USA Department of Family Medicine, Oregon Health and Science University, Portland, Oregon, USA.

Abstract

The ADVANCE (Accelerating Data Value Across a National Community Health Center Network) clinical data research network (CDRN) is led by the OCHIN Community Health Information Network in partnership with Health Choice Network and Fenway Health. The ADVANCE CDRN will 'horizontally' integrate outpatient electronic health record data for over one million federally qualified health center patients, and 'vertically' integrate hospital, health plan, and community data for these patients, often under-represented in research studies. Patient investigators, community investigators, and academic investigators with diverse expertise will work together to meet project goals related to data integration, patient engagement and recruitment, and the development of streamlined regulatory policies. By enhancing the data and research infrastructure of participating organizations, the ADVANCE CDRN will serve as a 'community laboratory' for including disadvantaged and vulnerable patients in patient-centered outcomes research that is aligned with the priorities of patients, clinics, and communities in our network.

KEYWORDS:

Addressing Disparities; Comparative Effectiveness Research; Federally Qualified Health Centers; Health Information Technology; Patient Centered Clinical Research Network; Patient Centered Outcomes Research

PMID:
24821740
PMCID:
PMC4078289
DOI:
10.1136/amiajnl-2014-002744
[Indexed for MEDLINE]
Free PMC Article

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