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J Child Neurol. 2014 Aug;29(8):1046-54. doi: 10.1177/0883073814533009. Epub 2014 May 7.

Family-centered care for children with cerebral palsy: conceptual and practical considerations to advance care and practice.

Author information

1
Bloorview Research Institute and University of Toronto, Toronto, Ontario, Canada gking27@uwo.ca.
2
Drexel University, Philadelphia, PA, USA.

Abstract

This article focuses on conceptual and practical considerations in family-centered care for children with cerebral palsy and their families. In the last 5 years, there have been important advances in our understanding of the components of family-centered care, and initial attempts to understand the client change processes at play. Recent research elaborates on family-centered care by delving into aspects of family-provider partnership, and applying family-centered principles to organizational service delivery to bring about organizational cultures of family-centered care. Recent research has also begun to consider mediators of client change, and new practice models have been proposed that embrace family-centered principles and illustrate the "art" of practice. Future research directions are discussed, including explorations of causal relationships between family-centered care principles, elements of caregiving practice, client change processes, and child and family outcomes. The meaning of the recent literature for pediatric neurology practice is considered.

KEYWORDS:

childhood; disability; family-centered care; pediatric neurology; service delivery

PMID:
24810084
DOI:
10.1177/0883073814533009
[Indexed for MEDLINE]

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