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Dementia (London). 2016 Jul;15(4):560-77. doi: 10.1177/1471301214529575. Epub 2014 Apr 17.

"We're all thrown in the same boat … ": A qualitative analysis of peer support in dementia care.

Author information

  • 1University of Edinburgh, Edinburgh, United Kingdom sarah.keyes@ed.ac.uk.
  • 2University of Edinburgh, Edinburgh, United Kingdom.
  • 3Independent Durham, United Kingdom.
  • 4Newcastle University, Newcastle, United Kingdom.
  • 5University of Northumbria, Newcastle, United Kingdom.
  • 6University of South Wales, Wales, United Kingdom.

Abstract

Peer support is well established in fields such as the disability movement and mental health and is increasingly recognised as one way of enabling support by and for people with a diagnosis of dementia and their immediate carers. It was central to the implementation of the National Dementia Strategy (NDS) for England, when 40 demonstration sites were established. This mixed-methods study included in-depth qualitative interviews with people living with dementia (n = 101) and staff/stakeholders (n = 82) at 8 of the 40 sites. Data analysis was a five-stage process: coding framework developed (using 25 transcripts); further development of the framework (using a further 70 transcripts); development of emerging themes; modelling of themes and verification of models based on the entire data set. Peer support had positive emotional and social impact that was rooted in identification with others, a commonality of experience and reciprocity of support. There was also a contrast between the quality of peer support and support from professionals. This emphasises the significance of lived experience and promoting a strength-based approach to interpersonal support that is enabling and challenges a deficit approach to understanding dementia.

KEYWORDS:

carers of people with dementia; commonality; lived experience; peer support; people with dementia; qualitative research

PMID:
24742876
DOI:
10.1177/1471301214529575
[PubMed - in process]
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