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J Int Assoc Provid AIDS Care. 2015 Jul-Aug;14(4):306-12. doi: 10.1177/2325957414526783. Epub 2014 Apr 11.

Patient Access to Online Visit Notes: Perceptions of Doctors and Patients at an Urban HIV/AIDS Clinic.

Author information

1
Division of General Internal Medicine, University of Washington, Seattle, WA, USA nvoster@uw.edu.
2
Division of General Internal Medicine, University of Washington, Seattle, WA, USA.
3
Division of Infectious Disease, University of Washington Medical Center, Seattle, WA, USA.
4
Division of General Medicine and Primary Care, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA, USA.
5
Group Health Research Institute, Group Health Cooperative, Seattle, WA, USA.
6
Division of General Medicine and Primary Care, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA, USA College of Nursing and Health Sciences, University of Massachusetts Boston, Boston, MA, USA.

Abstract

Patients living with HIV/AIDS face large societal and medical challenges. Inviting patients to read their doctors' visit notes via secure electronic portals may empower patients and improve health. We investigated whether utilization and perceptions about access to doctors' notes differed among doctors and patients in an HIV/AIDS clinic versus primary care setting. We analyzed pre- and 1-year postintervention data from 99 doctors and 3819 patients. HIV clinic patients did not report differences in perceived risks and benefits compared to primary care clinic patients, however, they were more likely to share notes with friends (33% versus 9%, P=.002), other health professionals (24% versus 8%, P=.03), or another doctor (38% versus 9%, P<.0001). HIV clinic doctors were less likely than primary care doctors to change the level of candor in visit notes (P<.04). Our findings suggest that HIV clinic patients and doctors are ready to share visit notes online.

KEYWORDS:

electronic health records; health information technology; human immunodeficiency virus (HIV); personal health records; visit notes

PMID:
24729072
PMCID:
PMC4194185
DOI:
10.1177/2325957414526783
[Indexed for MEDLINE]
Free PMC Article
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