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Aging Ment Health. 2014;18(8):986-96. doi: 10.1080/13607863.2014.899976. Epub 2014 Mar 31.

Factors contributing to caregiver burden in dementia in a country without formal caregiver support.

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1
a School of Nursing , Central South University , Changsha , China.

Abstract

OBJECTIVES:

To investigate caregiver burden in dementia and explore factors associated with different types of burden in a country without formal caregiver support using a province in China as a case.

METHOD:

Cross-sectional questionnaire survey was used to collect data. One hundred and fifty-two family caregivers of people with dementia in community settings were recruited from 2012 to 2013 using convenience sampling. Objective burden was measured by caregiving hours and dementia-related financial burden. Subjective burden was measured and analysed using the Caregiver Burden Inventory and the Neuropsychiatric Inventory-Questionnaire. Multivariate regression models were employed to analyse factors associated with each type of subjective burden.

RESULTS:

Five types of subjective burden were measured by the Caregiver Burden Inventory, namely, physical burden, emotional burden, time-dependence burden, developmental burden, and social burden. Caregiver distress, as a subjective burden, was measured by the Neuropsychiatric Inventory-Questionnaire and reported by relating to the severity of care recipients' behavioural and psychological symptoms of dementia. This caregiver cohort showed a high level of physical, time-dependence, and developmental burdens, but a low level of emotional and social burdens. Factors contributing to each type of subjective burden measured by the Caregiver Burden Inventory differed from each other.

CONCLUSION:

The high level of objective and subjective burdens identified in this study suggests that government-funded formal caregiver support should be established and services should be designed to target different types of burdens and factors contributing to these burdens.

KEYWORDS:

caregiver burden; cross-sectional study; dementia; dementia services

PMID:
24679066
DOI:
10.1080/13607863.2014.899976
[Indexed for MEDLINE]
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