Format

Send to

Choose Destination
See comment in PubMed Commons below
Front Genet. 2014 Mar 5;5:34. doi: 10.3389/fgene.2014.00034. eCollection 2014.

Genomic data-sharing: what will be our legacy?

Author information

1
Department of Clinical Research and Leadership, School of Medicine and Health Sciences, The George Washington University Washington, DC, USA.
2
School of Public Health and Health Services, The George Washington University Washington, DC, USA.

Abstract

Prior to 1974, the Tuskegee Syphilis experiments, expansive use of the HeLa cells, and other blatant instances of research abuse pervaded the medical research field. Ongoing challenges to informed consent, privacy and data-sharing will influence the stories that research participants today share with future generations. This has significant implications for the advancement of genomic science, and the public's perception of genomic research.

KEYWORDS:

ELSI; ethics; genetic research; medical; personalized medicine; privacy

PubMed Commons home

PubMed Commons

0 comments
How to join PubMed Commons

    Supplemental Content

    Full text links

    Icon for Frontiers Media SA Icon for PubMed Central
    Loading ...
    Support Center