Format

Send to

Choose Destination
J Am Acad Dermatol. 2014 May;70(5):871-81.e1-30. doi: 10.1016/j.jaad.2013.12.018. Epub 2014 Feb 24.

Patient perspectives in the management of psoriasis: results from the population-based Multinational Assessment of Psoriasis and Psoriatic Arthritis Survey.

Author information

1
The Icahn School of Medicine at Mount Sinai, New York, New York. Electronic address: mark.lebwohl@mountsinai.org.
2
Sorbonne Paris Cité Univ Paris Diderot, Department of Dermatology, APHP Saint-Louis Hospital, Paris, France.
3
St John's Institute of Dermatology, Division of Genetics and Molecular Medicine, King's College, London, United Kingdom.
4
University of Verona, Verona, Italy.
5
University of California, San Diego School of Medicine, La Jolla, California.
6
Dalhousie University, Halifax, Nova Scotia, Canada.
7
Department of Dermatology, Toulouse University and Larrey Hospital, Toulouse, France.
8
Hospital de la Santa Creu i Sant Pau, Barcelona, Spain.
9
Sclderm Research Institute and Dermatologikum Hamburg, Hamburg, Germany.
10
Radboud University Nijmegen Medical Centre, Nijmegen, The Netherlands.

Abstract

BACKGROUND:

Available psoriasis surveys offer valuable information about psoriasis and psoriatic arthritis (PsA), but are limited by methodology or enrollment requirements.

OBJECTIVE:

To further the understanding of the unmet needs of psoriasis and PsA patients.

METHODS:

This was a large, multinational, population-based survey of psoriasis and/or PsA patients in North America and Europe. Patients were selected by list-assisted random digit dialing and did not have to currently be under the care of a health care provider, a patient organization member, or receiving treatment; 139,948 households were screened and 3426 patients completed the survey.

RESULTS:

The prevalence of psoriasis/PsA ranged from 1.4% to 3.3%; 79% had psoriasis alone and 21% had PsA. When rating disease severity at its worst, 27% (psoriasis) and 53% (PsA ± psoriasis) of patients rated it as severe. Psoriasis patients indicated that their most bothersome signs or symptoms were itching (43%), scales (23%), and flaking (20%). Of psoriasis patients, 45% had not seen a physician in a year; >80% of psoriasis patients with ≥ 4 palms body surface area and 59% of PsA patients were receiving no treatment or topical treatment only. Of patients who had received oral or biologic therapy, 57% and 45%, respectively, discontinued therapy, most often for safety/tolerability reasons and a lack/loss of efficacy.

LIMITATIONS:

The survey lacked a control group, did not account for ethnic and health care system differences across countries, and was limited by factors associated with any patient survey, including accurate recall and interpretation of questions.

CONCLUSIONS:

Several identified unmet needs warrant additional attention and action, including improved severity assessment, PsA screening, patient awareness, and treatment options.

KEYWORDS:

health survey; patient satisfaction; psoriasis; psoriatic arthritis; quality of life; questionnaires

PMID:
24576585
DOI:
10.1016/j.jaad.2013.12.018
[Indexed for MEDLINE]

Supplemental Content

Full text links

Icon for Elsevier Science
Loading ...
Support Center