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Dtsch Med Wochenschr. 2014 Feb;139(9):434-40. doi: 10.1055/s-0034-1369813. Epub 2014 Feb 20.

[Anemia and hemoglobin diseases in patients with migration background].

[Article in German]

Author information

1
Schwerpunktpraxis für Pädiatrische Hämatologie-Onkologie, Gerinnungsstörungen und Kinderklinik der Technischen Universität, München-Schwabing.
2
Klinik für Kinder-Onkologie, -Hämatologie und Klinische Immunologie, Universität Düsseldorf.

Abstract

Among the German population with migration background there are probably 150 000-200 000 carriers of thalassemia (α und β) and sickle cell disease, respectively, who have no or little symptoms. Compared to neighboring countries the number of sickle cell (1000-1500) and thalassemia patients (500-600) in Germany is rather low. This may explain the fact that hemoglobin diseases are not yet considered a public health problem in Germany. With optimal care 85-90 % of children with sickle cell disease and 100 % of children with thalassemia reach adulthood. In order to increase awareness for patients with hemoglobin diseases we discuss the most pertinent disease manifestations of adult patients and point out possibilities to obtain information. Specialists in regional centers should be addressed for acute management problems. Up to now it is difficult for many adult sickle cell and thalassemia patients to find a physician well enough informed and experienced to take over the care of their complex disease. Many adult patients are still taken care of by pediatricians. Urgently needed are reference centers with experience in management of hemoglobin diseases who are qualified for training hematologists and who can assure the transition of these patients from pediatrics to adult medical care.

PMID:
24557998
DOI:
10.1055/s-0034-1369813
[Indexed for MEDLINE]

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