Format

Send to

Choose Destination
Rev Panam Salud Publica. 2013 Nov;34(5):336-42.

[External evaluation of population-based cancer registries: the REDEPICAN Guide for Latin America].

[Article in Spanish]

Author information

1
Consejería de Sanidad y Política Social, Murcia, España, carmen.navarro@carm.es.
2
Registro Nacional de Cáncer de Uruguay.
3
Registro de Cáncer de Euskadi, Vitoria, Gasteiz, España.
4
Instituto de Oncología Ángel H. Roffo, Buenos Aires, Argentina.
5
Registro Nacional de Tumores, Quito, Ecuador.
6
Escuela Andaluza de Salud Pública, Granada, España.
7
CIBER de Epidemiología y Salud Pública, España.
8
Escuela Nacional de Salud Pública, La Habana, Cuba.

Abstract

OBJECTIVE:

Evaluate the feasibility of the REDEPICAN Guide (Red Iberoamericana de Epidemiología y Sistemas de Información en Cáncer) and its adaptation to the current situation of population-based cancer registries (PBCRs) in Latin America and the Caribbean as a useful tool to improve these registries.

METHODS:

Experts in cancer registries and health audits designed the guide and developed seven domains to evaluate in PBCRs. Several criteria were selected for each domain, with corresponding standards, scored according to three levels of compliance. Two training courses for external evaluators and three discussion panels for experts were organized. The guide was tested in six PBCRs in Latin America and Spain.

RESULTS:

The guide contains 68 criteria, 10 of which are considered essential for a PBCR. Based on its score, a registry is regarded as acceptable (41-199), good (200-299), or excellent (300-350). The registry methods domain accounts for 25% of the score, followed by completeness and validity (19%), dissemination of outcomes (19%), structure (13%), confidentiality and ethical aspects (11%), comparability (9%), and the procedures manual (3%). The pilot project enabled (1) enhancement of criteria and standards, (2) expansion of the quality concept to include client needs, and (3) strengthening the dissemination of outcomes section. Two of the Latin American registries that were evaluated improved their quality, meeting the standards of the International Agency for Research on Cancer.

CONCLUSIONS:

Development of the REDEPICAN Guide has taken into account the context of the registries in Latin America and is a useful and innovative tool for improving the quality of PBCRs. Furthermore, it is ready for use in other countries and registries.

PMID:
24553761
[Indexed for MEDLINE]

Supplemental Content

Loading ...
Support Center