1. Int J MS Care. 2013 Summer;15(2):99-106. doi: 10.7224/1537-2073.2012-044.

Self-management for people with multiple sclerosis: report from the first
international consensus conference, november 15, 2010.

Fraser R(1), Ehde D(1), Amtmann D(1), Verrall A(1), Johnson KL(1), Johnson E(1), 
Kraft GH(1).

Author information: 
(1)Department of Rehabilitation Medicine, University of Washington School of
Medicine, Seattle, WA, USA (RF, DE, DA, AV, KLJ, GHK); and Department of
Rehabilitation Counseling, Western Washington University, Bellingham, WA, USA
(EJ).

People with multiple sclerosis (MS) must manage the day-to-day effects of the
disease on their lives. Self-management interventions may be helpful in this
challenge. An international, multidisciplinary consensus conference was held on
November 15, 2010, by the University of Washington's Rehabilitation Research and 
Training Center for Multiple Sclerosis (MS RRTC), with funding from the
Consortium of Multiple Sclerosis Centers (CMSC) and the National Institute on
Disability and Rehabilitation Research (NIDRR), to discuss the concept of
self-management for people with MS. The specific goals of the consensus
conference were as follows: 1) review the current research on self-management and
related issues in chronic disability and specifically in MS; 2) review optimal
research methodologies, outcome measurement tools, program planning frameworks,
and dissemination strategies for self-management research; and 3) establish
recommendations on the next steps necessary to develop, adapt, and test
self-management interventions for people with MS. The consensus conference and
this document are the initial steps toward achieving the stated goals.
Participants in the consensus conference concluded that it is necessary to: 1)
define an empirically based conceptual model of self-management for people with
MS; 2) establish reliable and valid self-management outcome measures; 3) use best
practices to validate models of self-management interventions; and 4) plan
dissemination and knowledge translation of interventions once their effectiveness
is established.

DOI: 10.7224/1537-2073.2012-044 
PMCID: PMC3883007
PMID: 24453769