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J Law Med Ethics. 2013 Winter;41(4):899-906, Table of Contents. doi: 10.1111/jlme.12099.

Predictive genetic testing of children and the role of the best interest standard.

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The Carolyn and Matthew Bucksbaum Professor of Clinical Ethics, a Professor in the Departments of Pediatrics, Medicine, Surgery and the College, and the Associate Director of the MacLean Center for Clinical Medical Ethics at the University of Chicago.


The "best interest standard" is the guidance principle for pediatric healthcare in the United States (US) and the United Kingdom (UK). In the UK, the best interest standard may also be used as an intervention principle when parents make good but non-ideal decisions whereas intervention in the US requires a determination of abuse or neglect. I examine whether and how the different uses of the best interest standard influence predictive genetic testing of children.

[Indexed for MEDLINE]

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