Format

Send to

Choose Destination
J Biomed Inform. 2014 Aug;50:196-204. doi: 10.1016/j.jbi.2014.01.003. Epub 2014 Jan 15.

A case study of the Secure Anonymous Information Linkage (SAIL) Gateway: a privacy-protecting remote access system for health-related research and evaluation.

Author information

1
College of Medicine, ILS2, Swansea University, Swansea, Wales SA2 8PP, UK. Electronic address: k.h.jones@swansea.ac.uk.
2
College of Medicine, ILS2, Swansea University, Swansea, Wales SA2 8PP, UK.

Abstract

With the current expansion of data linkage research, the challenge is to find the balance between preserving the privacy of person-level data whilst making these data accessible for use to their full potential. We describe a privacy-protecting safe haven and secure remote access system, referred to as the Secure Anonymised Information Linkage (SAIL) Gateway. The Gateway provides data users with a familiar Windows interface and their usual toolsets to access approved anonymously-linked datasets for research and evaluation. We outline the principles and operating model of the Gateway, the features provided to users within the secure environment, and how we are approaching the challenges of making data safely accessible to increasing numbers of research users. The Gateway represents a powerful analytical environment and has been designed to be scalable and adaptable to meet the needs of the rapidly growing data linkage community.

KEYWORDS:

Data linkage; Privacy-protection; Remote access system; e-Records research

PMID:
24440148
PMCID:
PMC4139270
DOI:
10.1016/j.jbi.2014.01.003
[Indexed for MEDLINE]
Free PMC Article

Supplemental Content

Full text links

Icon for Elsevier Science Icon for PubMed Central
Loading ...
Support Center