Format

Send to

Choose Destination
Autism. 2014 Oct;18(7):815-26. doi: 10.1177/1362361313512902. Epub 2013 Dec 18.

Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions.

Author information

1
West Virginia University, USA rivohra@hsc.wvu.edu.
2
West Virginia University, USA.

Abstract

This cross-sectional study examined perceived access to services, quality of care, and family impact reported by caregivers of children aged 3-17 years with autism spectrum disorders, as compared to caregivers of children with other developmental disabilities and other mental health conditions. The 2009-2010 National Survey of Children with Special Health Care Needs was utilized to examine the association between child's special needs condition and three outcomes (N = 18,136): access to services (difficulty using services, difficulty getting referrals, lack of source of care, and inadequate insurance coverage), quality of care (lack of care coordination, lack of shared decision making, and no routine screening), and family impact (financial, employment, and time-related burden). Multivariate logistic regressions were performed to compare caregivers of children with autism spectrum disorders to caregivers of children with developmental disabilities (cerebral palsy, Down syndrome, developmental delay, or intellectual disability), mental health conditions (attention deficit hyperactivity disorder, anxiety, behavioral/conduct problems, or depression), or both developmental disabilities and mental health conditions. Caregivers of children with autism spectrum disorders were significantly more likely to report difficulty using services, lack of source of care, inadequate insurance coverage, lack of shared decision making and care coordination, and adverse family impact as compared to caregivers of children with developmental disabilities, mental health conditions, or both.

KEYWORDS:

Access to services; autism; autism spectrum disorder health care; burden of autism; developmental disabilities; family impact; mental health condition; quality of care

PMID:
24353274
PMCID:
PMC4908578
DOI:
10.1177/1362361313512902
[Indexed for MEDLINE]
Free PMC Article

Supplemental Content

Full text links

Icon for Atypon Icon for PubMed Central
Loading ...
Support Center