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J Spinal Cord Med. 2013 Nov;36(6):600-15. doi: 10.1179/2045772313Y.0000000129. Epub 2013 May 22.

Identifying and classifying quality-of-life tools for assessing pressure ulcers after spinal cord injury.

Author information

1
Lyndhurst Centre, Toronto Rehabilitation Institute-University Health Network, Toronto, Ontario; and Division of Clinical Pharmacology, Health Outcomes and PharmacoEconomics (HOPE) Research Centre, Sunnybrook Health Sciences Centre, Toronto, Ontario, Canada.
2
Lyndhurst Centre, Toronto Rehabilitation Institute-University Health Network, Toronto, Ontario.
3
Lyndhurst Centre, Toronto Rehabilitation Institute-University Health Network, Toronto, Ontario; and Department of Physical Therapy, University of Toronto, Toronto, Ontario, Canada.
4
Lyndhurst Centre, Toronto Rehabilitation Institute-University Health Network, Toronto, Ontario; and Department of Medicine, Division of Physiatry, University of Toronto, Toronto, Ontario, Canada.
5
Lyndhurst Centre, Toronto Rehabilitation Institute-University Health Network, Toronto, Ontario; and Department of Medicine and Health Policy Management and Evaluation, University of Toronto, Toronto, Ontario, Canada.
6
Centre Interdiscipinaire de Recherche en Réadaptation et Intégration Sociale (CIRRIS), Québec, Québec, Canada; and Departement de Réadaptation, Faculté de Médicine, Université Laval, Québec, Québec, Canada.

Abstract

CONTEXT:

Although pressure ulcers may negatively influence quality of life (QoL) post-spinal cord injury (SCI), our understanding of how to assess their impact is confounded by conceptual and measurement issues. To ensure that descriptions of pressure ulcer impact are appropriately characterized, measures should be selected according to the domains that they evaluate and the population and pathologies for which they are designed.

OBJECTIVE:

To conduct a systematic literature review to identify and classify outcome measures used to assess the impact of pressure ulcers on QoL after SCI.

METHODS:

Electronic databases (Medline/PubMed, CINAHL, and PsycInfo) were searched for studies published between 1975 and 2011. Identified outcome measures were classified as being either subjective or objective using a QoL model.

RESULTS:

Fourteen studies were identified. The majority of tools identified in these studies did not have psychometric evidence supporting their use in the SCI population with the exception of two objective measures, the Short-Form 36 and the Craig Handicap Assessment and Reporting Technique, and two subjective measures, the Life Situation Questionnaire-Revised and the Ferrans and Powers Quality of Life Index SCI-Version.

CONCLUSION:

Many QoL outcome tools showed promise in being sensitive to the presence of pressure ulcers, but few of them have been validated for use with SCI. Prospective studies should employ more rigorous methods for collecting data on pressure ulcer severity and location to improve the quality of findings with regard to their impact on QoL. The Cardiff Wound Impact Schedule is a potential tool for assessing impact of pressure ulcers-post SCI.

PMID:
24090238
PMCID:
PMC3831321
DOI:
10.1179/2045772313Y.0000000129
[Indexed for MEDLINE]
Free PMC Article

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