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Nurse Res. 2013 Jul;20(6):40-4.

Multimethodology research with boys with severe haemophilia.

Author information

1
Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK. kate.khair@gosh.nhs.uk

Abstract

AIM:

To describe the use of an innovative, multimethodological approach to exploring the day-to-day experiences of boys across a wide age range to better understand the effects of modern haemophilia treatment on their lives.

BACKGROUND:

Children and young people with severe haemophilia can now be treated with prophylaxis and potentially have a lifestyle close to that of those without haemophilia. However, boys frequently describe living with haemophilia as burdensome.

DATA SOURCES:

The study, based on a grounded theory approach, was conducted with boys aged four to 16 years old, using research methods that included photo-elicitation, 'draw and write' techniques, focus groups run by participant co-researchers and individual interviews.

REVIEW METHODS:

Grounded theory was used to enable rich data capture, through reshaping of research questions as theory developed.

DISCUSSION:

The effectiveness of the methods used is discussed, along with consideration of the issues raised.

CONCLUSION:

These methods are effective for use with children. They can result in robust data and are also fun for child participants.

IMPLICATIONS FOR RESEARCH/PRACTICE:

Understanding life with chronic disease from a child's perspective can improve clinical care through a better understanding of health behaviour and lifestyle implications.

PMID:
23909111
[Indexed for MEDLINE]

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