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J Law Med Ethics. 2013 Summer;41(2):470-83. doi: 10.1111/jlme.12056.

The apomediated world: regulating research when social media has changed research.

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1
Johns Hopkins Berman Institute of Bioethics.

Abstract

Social Media, like Facebook and Twitter, are having a profound effect on the way that human subjects research is being conducted. In light of the changes proposed in ANPRM, in this article I argue that traditional research ethics and regulations may not easily translate to the use of social media in human subjects research. Using the conceptual model of apomediation, which describes the peer-to-peer way in which health information is shared via social media, I suggest that we may need to think again about the suitability of current regulations to deal with social media research.

PMID:
23802898
DOI:
10.1111/jlme.12056
[Indexed for MEDLINE]
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