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J Empir Res Hum Res Ethics. 2013 Apr;8(2):119-28. doi: 10.1525/jer.2013.8.2.119.

Developing a family-based HIV prevention intervention in rural Kenya: challenges in conducting community-based participatory research.

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1
Department of Psychology and Neuroscience, Duke University, Durham, NC 27708, USA. eve.puffer@duke.edu

Abstract

Community-Based Participatory research (CBPR) introduces new ethical challenges for HIV prevention studies in low-resource international settings. We describe a CBPR study in rural Kenya to develop and pilot a family-based HIV prevention and mental health promotion intervention. Academic partners (APs) worked with a community advisory committee (CAC) during formative research, intervention development, and a pilot trial. Ethical challenges emerged related to: negotiating power imbalances between APs and the CAC; CAC members' shifting roles as part of the CAC and wider community; and anticipated challenges in decision making about sustainability. Factors contributing to ethical dilemmas included low access to education, scarcity of financial resources, and the shortage of HIV-related services despite high prevalence.

PMID:
23651936
PMCID:
PMC3743433
DOI:
10.1525/jer.2013.8.2.119
[Indexed for MEDLINE]
Free PMC Article
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