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BMC Cancer. 2013 Apr 23;13:203. doi: 10.1186/1471-2407-13-203.

Improving cancer patient care: development of a generic cancer consumer quality index questionnaire for cancer patients.

Author information

1
Department of Demand-Driven Healthcare, Netherlands Institute for Health Services Research, NIVEL, PO box 1568, Utrecht 3500 BN, The Netherlands. j.booij@nivel.nl

Abstract

BACKGROUND:

To develop a Consumer Quality Index (CQI) Cancer Care questionnaire for measuring experiences with hospital care of patients with different types of cancer.

METHODS:

We derived quality aspects from focus group discussions, existing questionnaires and literature. We developed an experience questionnaire and sent it to 1,498 Dutch cancer patients. Another questionnaire measuring the importance of the quality aspects was sent to 600 cancer patients. Data were psychometrically analysed.

RESULTS:

The response to the experience questionnaire was 50 percent. Psychometric analysis revealed 12 reliable scales. Patients rated rapid and adequate referral, rapid start of the treatment after diagnosis, enough information and confidence in the healthcare professionals as most important themes. Hospitals received high scores for skills and cooperation of healthcare professionals and a patient-centered approach by doctors; and low scores for psychosocial guidance and information at completion of the treatment.

CONCLUSIONS:

The CQI Cancer Care questionnaire is a valuable tool for the evaluation of the quality of cancer care from the patient's perspective. Large scale implementation is necessary to determine the discriminatory powers of the questionnaire and may enable healthcare providers to improve the quality of cancer care. Preliminary results indicate that hospitals could improve their psychosocial guidance and information provision.

PMID:
23617741
PMCID:
PMC3648393
DOI:
10.1186/1471-2407-13-203
[Indexed for MEDLINE]
Free PMC Article

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