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Thorax. 2013 Oct;68(10):971-3. doi: 10.1136/thoraxjnl-2012-203201. Epub 2013 Feb 21.

Research in progress: put the orphanage out of business.

Author information

1
Department of Paediatric Respiratory Medicine, National Heart and Lung Institute, Imperial College, , London, UK.

Abstract

Paediatric interstitial lung disease (ILD) is rare and diverse, meaning no single centre will see sufficient children to perform the studies needed to make progress. This EU FP-7 grant will standardise the evaluation of these rare conditions by establishing pan-European multidisciplinary expert panels and establish consensus on treatment protocols and standard operating procedures across Europe. We will work with patient groups to determine optimal treatment end-points and biomarkers. A biobank will be established as a Europe-wide resource for mechanistic studies. Ultimately we aim to do the first randomised controlled trial of a pharmacological treatment in paediatric ILD.

KEYWORDS:

ABCA3; Allergic Alveolitis; NEHI; PIG; Paediatric interstitial lung disease; Pulmonary vasculitis; Surfactant protein

PMID:
23429832
DOI:
10.1136/thoraxjnl-2012-203201
[Indexed for MEDLINE]

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