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J Spec Pediatr Nurs. 2013 Jan;18(1):42-53. doi: 10.1111/jspn.12010.

Cystic fibrosis-related diabetes in older adolescents: parental support and self-management.

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1
School of Nursing, University of Alabama at Birmingham, Birmingham, Alabama, USA. carol.dashiff@me.com

Abstract

PURPOSE:

The purpose of this study was to describe the experience of cystic fibrosis-related diabetes (CFRD), parental support of adolescent self-management, and the relationship of parental autonomy support with disease self-management.

DESIGN AND METHODS:

Semi-structured interviews and questionnaires were employed in a study conducted with 10 adolescents and their parents.

RESULTS:

Parents and adolescents lacked confidence to manage CFRD. Mothers' autonomy support was associated with adolescents' CFRD competence and cystic fibrosis self-care. Fathers' autonomy support was associated with mothers' reports of adolescent cystic fibrosis self-care.

PRACTICE IMPLICATIONS:

Education about CFRD management and support of adolescent autonomy in disease management is needed.

PMID:
23289454
DOI:
10.1111/jspn.12010
[Indexed for MEDLINE]
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